Moyamoya Resources, Research, Support & Advocacy

Moyamoya disease is a rare, progressive cerebrovascular condition that affects the blood vessels in the brain, leading to reduced blood flow, strokes, mini-strokes (TIAs), seizures, and cognitive impairment. Though it's rare, its symptoms often overlap with other more common diagnoses like ADHD, developmental delays, migraines, or even anxiety — especially in young adults and children — which can lead to misdiagnosis or delayed treatment.

The name “moyamoya” comes from a Japanese word meaning “puff of smoke,” which describes the appearance of tangled blood vessels seen on brain imaging. Despite being a medical rarity, moyamoya can have a profound impact on daily life, schooling, career goals, and mental health. Early diagnosis and specialized care are critical to preventing long-term complications.

At Haley’s Choice, we aim to raise awareness about this condition through verified resources, clinical information, and patient-led storytelling. Whether you’re living with symptoms, seeking a second opinion, or want to support a loved one, we’ve curated reliable sources to help you better understand the signs, testing options, and treatment pathways.

We direct you to top-tier organizations like The Moyamoya Foundation, Mayo Clinic, National Institutes of Health (NIH), and dedicated support groups offering emotional and peer support. Many young adults — especially students, young professionals, and partners — are navigating symptoms without clear answers. Learning about moyamoya could offer a missing piece to the puzzle, especially when combined with medical advocacy and genetic consultation.

By spreading awareness and fostering community, we hope to reduce diagnostic delays and help more families and individuals feel seen, supported, and informed. Whether you're a patient, a parent, a partner, or a provider — knowledge about moyamoya saves lives, and your voice matters.